Well, I got off that one…

This Briviact medication that I recently started, I chose to stop. The choices towards this are based (mainly) on the price. Medicare does not cover the price of this very much. Too new for it to be recognized as a medication I need for seizures? Probably. Medications, especially seizure ones, can be prescribed to people for other reasons.

I was also given the chance to have it at an extremely lower price… as a “tester”. OK…. that wouldn’t be too bad. But then I learned that this “testing” only lasts for two years. I would only pay the lower price until the two years are over with. Uhhhhh… I’ll pass. Hate to say it, but I only want to change to this one if I can take it for a hopefully a longer amount of time.

The other reason…. It is too tiny of a pill to believe (my opinion) that there will not be any problems with anything. It expected to work completely without a doubt. To me, I honestly think that I have taken SO MANY different pills in my life for seizures, but not this tiny.

Now, this Depakote ER that I still take is still working. I hate some of the side-effects that I’ve had for (about) a decade, but still it still works for controlling seizures.

Lets go a bit further with what we have today. So, I got onto the new Briviact easily within a couple days. That was easy. Next, I would need to get off the Depakote ER. That would need to take several weeks to finish this. I was down to “half as much” of the Depakote ER, before choosing to not go with Briviact. Getting off (or back on) a Depakote ER pill takes time. I’ve done this so many times in my life, too.

What have I done with this Depakote ER, that I should (maybe) be getting back on?? I’ve made this decision to NOT go back up on the Depakote ER. I’ll just (for now) not go down any further.

So! Where are we now? I have another Neurologist appointment soon. The two of us will discuss the NEXT medication to do, and give that one a try.

This New Med

I’m not entirely happy with this new BRIVIACT that I started taking. ONE reason is the price. Holy Crap! This expensive (tiny) pill is one that I take twice a day.

I can’t recognize if this tiny new pill is actually helping as good (or better) than the Depakote ER. I haven’t had any new daytime seizures while on the Briviact. I don’t know if I’ve had any seizures at night, while sleeping. Right now… I’m taking the full-amount of Briviact and I’m only half-way through getting off the Depakote ER. Still working through this LONG process of getting off Depakote ER. Thankfully, I chose to not be in any hurry.

So far… I’ve had the serious thought of just staying on only half Depakote ER (where I’m at right now), and completely dropping the EXPENSIVE Briviact. We’ll see how all this goes. I’ll let you know. Need to talk with my New Neurologist first before completely going this way.

I want to hear about any other medical choices.

I am feeling better being on only half the Depakote ER. I sure can talk better now.

Neurologist Visit.

I saw my new Neurologist yesterday. With all this COVID-19, I didn’t do the medication change several months ago. But now… I have decided (after “understanding” this COVID-19) to start a medication-change again. I’ll start this in a couple days (this weekend). I’ll have to see how all this is working afterwards. Any of these new meds have all-new side effects and everything changes for me. I’m getting OFF the Depakote ER that causes the increased tremor and inability to speak all the words that I’m thinking of.

So… What is the new one?

BRIVIACT

After looking this up, I see the main side-effects are… 

Drowsy (just like all the others I have ever taken) 
Dizziness (just like all the others I have ever taken)
Loss of balance or coordination (just like all the others I have ever taken)
…and a few other things. (nothing new) 

One pill in the morning and one pill at night. Then I have to go through the whole process of getting off an old one. I’m not getting off ALL of them. Just changing the Depakote ER.

As long as my entire speaking comes back, the extreme tremor is lost and seizures are controlled, this will work just fine.

Well… Not now.

As you may have read from my last entry, I had the opportunity to start taking new medication. Well…

All I have to say now is…

With all this shit going on in this world right now, I don’t need to go another medication change if nothing is depending on it. I can only focus on one or the other. Not going for both. Maybe someday down the road. Maybe. Someday.

Ah, A New Neurologist

Ok. I have been in the need for a new Neurologist a very long time. With “long time” meaning years. I go and see a new one here in the town where I live. “She” is what I need. Yes… a female Neurologist. Never had one of those.

So, we meet for the first time. I tell her my story about everything dealing with this thing between my ears. She asks me what I need…

“New medication. I’m tired of this other one that is forcing me to wear this brace.”

So now, I “just started” a new med. As you guys may know, a person with medication for seizures isn’t a “easy to change” thing. Have to slowly get on the new medication, then get off the old. Cannot be completely off seizure meds at any time.

So, that’s where I’m at. When I make it through this change, I’m sure I’ll think differently like I usually have in the past. We’ll wait and see…