An EEG… at home.

It’s been awhile since I added an entry, huh? That’s okay, I have things to write about now. A few months ago, I visited the hospital where I received my brain surgery. In fact, back in December is when I visited and where I was told a Neurologists there wanted to “check” on me. “Just check”… is what I was told.

Well, I went to the University Hospital to get checked. Nothing special, I thought. They just wanted to check and see if I’m actually still alive. Right? Well, they saw me and spoke with me for awhile about a “test” they hadn’t done on me.

When they told me about an EEG, I said.. “EEG? I’ve done all those.” No reason to do it again. I fact, after a recent ambulance ride, I was given the chance to do an EEG. I did that one, and that was that.

I was assured that this EEG was one I hadn’t done before. This is because it’s only five years old and it’s done AT HOME.

Hmm… Guess I haven’t done THAT one before. I said, “Ok. BUT this is not a test to see if I would like the chance to do more surgeries.” The doctors agreed. Just a “newer” test I hadn’t done before. It was explained that a vehicle would come to the house and I would be set with the probes on my head… at my house. I don’t need to drive to the hospital. I don’t need to spend time in the hospital with probes on my head (already did that) and while laying in bed.

This was only a small difference from that. I stayed at home and DID NOT have to stay inside. No, just live at home (with 2 video cameras) and just see how it goes.

This testing was interesting. A guy came to my house on Sunday afternoon and set my head full of probes. THREE HOURS he was there. Talked me through the whole thing, and then started setting me up. Couple hours to put all those probes all over my head. Strung them all together and plugged them into a power box for me to carry. THEN, he had me lay in my bed and sleep for an hour. (Being a Sunday afternoon and just getting the probes stuck to my head, I couldn’t fall asleep…) With my head installed with the probes, and all of them connected to a power box that I had to carry, it was…..interesting.

This is about half-way through getting all those probes on my head.

This is the whole thing finished and what I wore. Button-up shirts is what I found to be easiest.

Tried to just live a normal life, but with all the probes on the head that were all wrapped in gauze, I decided that bike riding was out of the question. Bummer. So I just sat at home. Sunday… Monday… Tuesday… Then Wednesday afternoon came and the person was back at my house to take the probes from my head.

Ok, I didn’t just stay at home the entire time. I went to Walmart on two of the days for an hour, just to (honestly) see the way people would react. Most of them saw me, them quickly looked away. Very interesting situation. Had a couple different ladies talk to me all about it. They were interested.

Wednesday was no big deal, to me. But getting the probes and glue from my head? Takes some patience while washing my hair a couple times. (Still not entirely sure if I have it all out…)

And this is what I kept….

Just a bunch of wires and probes that were on my head. Along with the “white cover” over all of it.

No idea what they’ll learn. I, personally, am sure that I am not getting another surgery. Now, I’m NOT saying this brain surgery I had isn’t worth the testing and work for all people to get, that need it. I do know about others where this surgery HAS been successful. Keep an open mind and learn all you can.

A Ride in the Ambulance… Again…

Things had been going pretty good, up until Tuesday this week. I was doing my “normal volunteering” on that day, when I felt it coming on. I collapsed in my church’s food pantry, and awoke in the back ambulance. Dang it! Since the seizure was lasting so long, an ambulance was called.

Oh well… Arrived at the hospital, and was pushed into one of those personal size side-rooms where the lucky patients are decided upon as to where they need to go. I had enough of the machines there and had me hooked up. There wasn’t too much that could be done, really. It’s more or less…

“How are you feeling? Are you back to normal?”
“Yeah, I’m getting back to normal eventually.”
“You had the majority of the seizures earlier. Your Neurologist is increasing your meds. You can go ahead and go home.”

One of my seizure meds is being increased from 600mg to 900mg. We’ll see how this turns out. See what kind of side effect charges occur. The question in my head is: “which ones I’m already feeling are going to effect me more now…”

“How Long Ago Was That?”

Well, it has been Ten Years. Yes, as of today, it has been ten years since receiving the brain surgery. This brain surgery didn’t work for me as it should have, but I have heard this same surgery has worked well for others. I am currently living on disability money and full Medicare, which is nothing to complain about. When you walk into the courtroom to qualify for SS Disability, and you happen to have a hundred staples on the top of your head, things seem to work out kinda fast there… without saying too many words.

I know, there are different situations of brain damage and surgery that have worked out better. …I also know of plenty of others who have NOT worked out as well.

I’m still alive and functioning just fine. The fact that I am still capable to live just fine (alone) in my own house, is quite incredible. (At least it is to ME!)


Go ahead and take a stroll back to ten years ago.

I’ll keep in touch on this site and we’ll see where this small amount of “stuff between my ears” wants to take me next in my life…

I almost made it…

Over a month ago, I had one of those “things” happen to me. You know, the situation where you wake up somewhere you wish you didn’t.

Yeah, that one…

So, in the last week of August, I was doing my “usual” daily bike riding. The ride where I go to an empty parking lot and basically ride in an oval. I’ve done this for YEARS and after a while anyone (like me) can just petal for hours and hours with no problem. This parking lot is cool (at least it is to ME) because it’s right next to train tracks that have the trains going by all day. It’s “comfortable”.

So, on the 29th (last Tuesday in August) I was riding for quite awhile and I began feeling somewhat dizzy. I’ve been through this before. It was the beginning… an aura before a seizure. 

When feeling this aura, I was on my bike and thought I could just ride home really fast and not worry about it! Well…. the first place I need to go, when going back home, is across train tracks. Not too hard, except there is a couple trains going by. So, I have to wait for the (what seems like at the time) longest train to go by. I cross the tracks, but now I have to cross the main road in town (right after a train, it gets very busy on the street) and my eyes are wobbling left-and-right. When I squint my eyes it’s easier to see, so I cross the 5 lanes of traffic and get back into my neighborhood.

I do make it past the traffic and I STILL think I can make it all the way home! 

Well, the next thing I know is that I’m opening my eyes in an ambulance. CRAP!! 

First thing I ask:
“So, did I make it back to my house?” 
“Uh, no….”
“How close was I?”

Well, THAT is dumb question to ask while in the back of an ambulance. 

I spent a few days (Tuesday, Wednesday, Thursday) in the hospital. (Thankfully, my mom was there too.) I could have gotten out of the hospital on Wednesday. But, it was agreed that I should have the EEG and MRI tests while I was there just to see how much was still between my ears. Basically, enough… 

When I’m writing this, it’s been over a month since waking up in an ambulance. Thankfully, I’m feeling much better and back to “normal”.

Handicap

Like others here in the USA, I got my drivers license when I was 16… (1990).

Twenty-some years ago, I sprained a wrist or finger or thumb or foot or something, and I visited a local clinic to get it looked at. When I was there, I told the doctor my entire story of my “falling (a pretty-good distance) out of a tree” when I was 10, spending a month on a coma and leaving my brain with a permanent bruise on the left-frontal lobe. The doctor at the clinic (after telling my “impressive story”) gave me a sheet to take to the DMV and I’ll get handicap parking. Went there to turn the paper in and I received a handicap hang-tag that had the word PERMANENT on it. I asked the lady…

“Why does this say ‘Permanent’? How long is it good for?”
“You can park in handicap spots for the rest of your life.”

I laughed!

So, after having the hang-tag in my car for some years, I thought…

“If I have a ‘permanent’ hang-tag, does it mean I could just go and get a handicap license plate?”

Well…. YES… Yes I can!

That is what I did. That is what I still have today.

See? Being handicap is cool… 😉