Went to the hospital and met a new Neurosurgeon today. We discussed this new brain surgery to fix my tremor. The surgery that’s on my left-side of my brain and fixes the tremor on the right-side of the body. The surgeon explained the WHOLE thing.
The tests before…
The surgery itself…
The outcome afterwards…
Well, all these tests we talked about were the same ones I did before my previous brain surgery. Doing those again, to me, is not a big deal. Not as many tests as last time. No surprises there. Having to do any & all of these tests is not a problem for me…
This surgery (I’ve written about earlier) is not commonly used with people who had a previous brain damage, like me. I was curious as to what a Neurosurgeon had to say about this.
After all this…. well… it will NOT be a 100% fix for the tremor on the right-side of my body. I was basically told that my tremor may either be somewhat better OR not fixed at all.
With all this surgery as being so risky, I personally just turned it down. This arm/hand just “shakes”. I’ve been this way for 30+ years. I’m good. I’ll pass…
Today I went to see my Neurologist. I explained about the new medication he prescribed at the previous visit. The one to remove the tremor. I told him about how this one was causing me to have the “sleep-all-day” side-effect. That was WAY too much for me to deal with.
He was suggested a prescription for a different medication to do the same job to help with the tremor.
“Uh, no. I’ve had to cope with this tremor for 30+ years. Have went through PLENTY of the side-effects from each one of those prescriptions. Tremor has been better. Tremor has been worse. I have had to deal with it all.”
Once, a “new” medication was SO terrible that it caused my arm/hand to shake all night long!
So, nothing has changed…… for now.
About a week ago, I was calling over to the hospital to speak with my new Neurologist about the newest medication I’ve been on for awhile. The one thing that I hated with it is that it had to be taken 3x a day.
Well…. one of the side-effects was REALLY kicking in last weekend. Oooohhh…. That thing was making me sooo tired. I’d get up, take pills, eat breakfast, and was so tired that I just had to lay back down. I was OUT. Woke up at noon, took a pill, ate lunch and just had to lay down again! Woke up for dinner…… on and on and on…..
I finally told myself NOT to take anymore Sunday night or Monday morning. Monday, I called over to the office of my new Neurologist and spoke with the nurse about the problems for the weekend. She told me just to stop the Morning and Noon. Uh, no. I told her that I was wanting to COMPLETELY STOP the pills all-day. She and that was fine. I was only taking them for the reason of stopping the tremor in my right arm and hand. Made it “better”, but the tremor was still there (not as bad as before). If the pills were COMPLETELY getting rid of the tremor in my arm, then I would be concerned with getting off it. I didn’t want to change the med. But I could be just sleeping all day with it EVERYDAY! ARGGGG…..
So, I got completely off that pill and now my right-hand (and arm) has the bad tremor back. It really bothered me when it started coming back. But after a few days, I have just gotten used to it (I guess that’s kinda the way I’d put it). I’ve had this before, so I have gotten used to again.
I was told on the phone that the new Neurologist should call and discuss. That wasn’t happening. So, here’s where I am: The one prescription is removed. Not feeling like I just want to sleep 24 hours a day. Tremor in my arm/hand has returned worse than before.
Other than all that, everything is great again as far as the THINKING and TALKING goes. I can just stay this way until another surgery (someday) would help. That’s where I am.