Spoke with a new Neuro-doctor today. This discussion was about another surgery which will reduce the tremor from the right side of my body. Maybe not ENTIRELY, but to hopefully (somewhat) fix the arm/hand & [maybe] the foot. What will be done is the insertion of a wire into a certain part of the brain and the other end is connected to a probe underneath the skin. This probe is located at about the same height as the heart, just on the right side of the chest. …and underneath the skin with both the probe and “wire”.
He told me how this will be done and ALL the side effects. Those (possible) side effects don’t seem TOO bad (to me). But still, these side effects are not the most enjoyable things.
Earlier in this blog, there is the video of a person who had just received this surgery. He speaks about how he has this device to help with his Dystonia. Not damage in the brain, like me.
Several years after getting this to my brain, I will need to get back to the hospital and have another “quick” surgery. This is just to “change the battery” in the device.
To me, this is entirely CHOICE. Not a life or death necessity. Need to look… and talk… and think further into this.
Oh! I asked about the…
“Will I be awake while doing this surgery?”
Likely, it will be either… maybe YES, or maybe NO.
I can probably figure that one out when I’m on a table in the operating room. I’ll just tell you RIGHT THEN AND THERE.
My next thought is: Will I be able to “REMEMBER” anything afterwards??? 😛
I saw my original Neurologist today and was told that everything is looking good after the last 6 months.
Now, before having another surgery, I need to do MORE TESTS. All of these tests are done to see if everything is working fine. They are also done to see if there are any more changes since a few years ago…… after the originally completed brain surgery.
Ugh….. ANY Neurological tests are NOT the most enjoyable thing to do…
All of these will be checking the qualifications for the surgery I’ve been talking about recently: “fix the tremor on my right side”.
We will talk more about that as time and tests go on… and on…. and on….
Saw this new doc again today. Just a slight change in the amount of medication, but that was about it. It was discussed that the “tremor removal surgery” has to wait to be decided upon. This doctor has said the surgeon, who particularly does the implant (that I discussed a month ago), won’t have the time for another several months. Sooooo…. no REAL change.
Well.. with the new Psychologist, here are the things to be done. What I originally thought is that a is there would be new medication to help me with the psych-things (whatever those things are called). I learned that his idea in mind was what to prescribe to me was a medication that I WAS ALREADY ON.
He suggested to INCREASE a med and help with needs. Seizures (one thing it’s good for) is what I don’t need it for anymore. Um, but I have been trying to get that medication LOWERED by using another medication.
Being put back ON the medication that I worked hard to get off by getting this brain surgery??? HELL NO! The whole reason (to me) to have this brain surgery was to get off the stuff. I need to speak with someone else, or something like that.
Need to think about what to do next….
Ok… Ok… This is Tuesday and this is FIRST a….
Just the usual…. while eating lunch…
Psych: How have you been doing?
Me: I’m doing good…..
You know, the usual…
Then the SECOND thing is…
Ah… What did we learn there today?
Well, it’s been awhile since I’ve seen one of my Brain Docs….
Me: I’m doing good…..
Doc: Let’s start lowering the Meds.
At the first appointment, I was ASKED how I was doing.
At the second appointment, I was TOLD what I will be doing.
Ugh, I think I did these appointments backwards today…
Eh, what am I going to do now…?
I think I will give myself a nice “pat on the back” for the hard work.
I had an appointment to see my Brain Surgeon at the hospital today.
I asked another Doctor who came to check on me…
“So, is my Brain Surgeon busy doing someone else’s brain today, and this is the reason I am unable to see him at this time?”
“No, the Neurosurgeon is in China right now for a conference where he is speaking.”
WHAT? My Brain Surgeon would RATHER go to China, and speak to other people who (probably) don’t understand what he is saying, rather than meet with his success?
Okay…. So, at the end of the meeting that I was having today with a different Doctor, I was told that I had no reason to come back and “try” to see the surgeon again for anymore years. I was informed that the SURGEON’S job is ALL DONE and it all looks good.
I’m sure they meant.. DON’T try to come and see him again!
But I think that I WILL try.
All BRAIN SURGEONS just need to be visited on a regular basis, right? They want to observe the good jobs that they completed successfully? RIGHT?
I went ahead and set up another appointment for late next year, even though they said that I do not need to come back at all. But, then again, don’t you think I should go ahead and KEEP TRYING until I see him? RIGHT?
Is he going to stay around the office just to see me? ….a year from now?
Mmmmm…. maybe. I’ll find out then…
Today is the day. The day for my important appointments at the hospital where I had my surgery.
First, in the morning, I saw my Neurologist and he talked about how happy he was. Happy to see me doing better and better in every way since the last time I had seen the him. I asked the doc about volunteering more than just one day per week, and he agreed that I should.
Woo Hoo! More volunteering!
NEXT… in the afternoon, I had another doctor’s appointment at the same hospital. This was to see a NEW Psychologist. Interesting to talk with a different Psychologist. Explained everything I had been through from my prospective, and he was quite impressed with “my story” of everything I’ve been through dealing with… my brain surgery.
“That’s an impressive story! I’ll see you again in six months.”
So, today was a LONG day at the hospital, but it turned out easy and all good.