This Brace

I just knew there had to be good thing out of having this wrist-brace. I can receive sympathy from strangers (girls) when the brace can be seen on my wrist. Nearly impossible to get sympathy from anyone concerning brain surgery. Can’t see brain surgery. People don’t really believe stories about brain surgery. But with this BRACE on my WRIST… oh, I can get all kinds of reactions upon seeing THAT.

You know, these “girls” coming up and asking:
“Oh, what happened? Does it hurt?”

My reply:
“It hurts after being in a fight… just a bit.”
…and then I stick my arm out there for them to see it.

ha… ha… ha…

Yeah, a fight.
Not brain surgery.

This Wrist

I’m still in pain from the tremor. Not as bad? Let me explain…

Last week on Friday, I saw a new doctor where I told her about my increased tremor. She understood what I was saying and told me that I’d be seeing some other doctors to get a better idea of what needs to be helped and/or fixed. Fixed? Well, that would be GREAT, but I believe that all this is happening because of one (or more) side-effects of the seizure medications I take. A major (but not common) side-effect is a, or increased, tremor. So…

Let me show you what this FIRST doctor gave me to constantly wear. Drum roll, please….

Okay, this was one of the first fittings I was trying to redo. Little tight in this picture, but I got it fixed. Basically I was ordered:

“Wear this now and ALL DAY & EVERYDAY. … just not while you take a shower.”

“So, how long am I going to wear this? Forever and Ever?”

“Yes. Forever and Ever.”

Holy Crap! This is not fun when you have a permanent tremor on the right-side of your body and this is trying to hold it still. The wrist is held like a board, but my elbow & fingers are still shaking. Drinking coffee while I type this doesn’t help either. We’ll just see how long THIS lasts….

Okay, lets go ahead with this Orthopedic doctor that I saw yesterday. Basically it was…

“Does this hurt when I do this?”

“Well, the first time you moved it & squeezed it, it hurt. The second and third times, it didn’t hurt.”


Kept trying to make it hurt, but he was unsuccessful. Told me there wasn’t any way he could help me. (For some reason or another)

NEXT!

Better….

I’m better now after the last days of serious pain in my right wrist/hand. I would guess it’s the pain medication I’m on? Maybe, probably. But, I am somewhat feeling better for now.

I’ll get it “entirely fixed”. Really!someday.

This thing won’t stop!

What really sucks about this tremor is that it still HURTS. This thing won’t stop its tremendous shaking. I DID finally (because of someone else telling me to) go to one of those walk-in clinics to get it checked out. Yeah, the doctor said it didn’t look good and he had me do some x-rays. This was interesting. A lady was having me sit in a chair with my arm rested on a table with a scanner above it. She’d walk to another room, press a button and then came back. I told her that my arm was “shaking” while that was being done. She told me it wasn’t a problem. (Fast X-Ray?)

The doctor took a look at my x-ray and told me that it wasn’t broken.

“So… You just going to drug me up and call it good-enough for now?”

Basically, that was it. I now have a bottle of Meloxicam that I take once a day. So, I took one when I got home today and, well, it still hurts. The one good thing is that since I have Medicare (because nearly ALL the stuff previously talked about) so that it didn’t cost me anything. 🙂 Heck of a deal, huh? (ok, the medication was $2…)

But still, even with this LOW price, I would love to be guaranteed 100% satisfaction at the moment I swallow one of those pills.

This Arm HURTS

This right-arm of mine has recently become more and more drastic in the sense that it shakes incredibly worse. My fingers and my wrist are really bad. It hurts SO MUCH. Before, I would need to hold something to “hold it still”, but now my entire arm hurts from the shaking. This is killing me.

Earlier in my life, I was able to entirely relax my arm (easy at night while sleeping) and it wouldn’t shake “at all”. Now, that doesn’t seem to matter anymore. Then again, at this very moment my arm seems okay when it is entirely relaxed and this “brain of mine” is focused on typing. Today (for once) I am going to “try” and take the time for this ENTIRE DAY to NOT drink my coffee or soda. TRY is the keyword. “try…”

I’ll see what happens with that. So far nothing has changed. Still shakes and hurts.

The things I’ve been through…

Okay… It’s been awhile. Let’s look at the previous entry from way back in August. Back then, I had started seeing a new Psychologist. This is just something that I just felt needed to be done. No big deal…. right?

Well… it was working with this person to “change medications”. Honestly, this was a dumb idea and I should have denied to do it. Instead, I went ahead and agreed to change one… or some… or all. Whatever. No big deal…. right?

It IS a big deal. I’ve been taking these medications from my Neurologist for years and was asked by the Psychologist to just entirely drop one. The reasons for this medication I was taking was seizures (by a Neurologist) and I was using the SAME medication for another reason (by a different doctor). Well, this new Psychologist told me to just drop it because… well… I honestly can’t remember the entire reason for that. SO, what happens to me when I just “drop” a seizure medication?…

I have a bad-ass seizure on the day-after Christmas.

I was lucky that my awesome son is with me at the house. He finds me on the living room floor and calls an ambulance. I have no memory of this and the next thing I know is that I’m opening my eyes hours later in the same hospital where I got the brain surgery done. SHIT! At that time I could see and hear, but I just couldn’t speak. I was told that my brain was not working enough to get words all the way through and out my mouth, so the doctor will be back later. Thankfully, after an hour or so, I was able to talk when the Neurologist returned.

I was told that earlier (but don’t remember) that I had been put through enough brain scans to look further. It’s still there… what little is left (haha). I was just basically told to GET BACK ON the medication that I had stopped, but only getting on it SLOWLY. Started this all over again directly after getting out of the hospital, and I AM STILL slowly getting back on these pills in April.

Okay. Side effects of this medication that I had gladly gotten away from before having the seizure: “increased tremor” and “getting less words out of my mouth”.

I’ve always had a tremor in my arm/hand since the damage to my brain 35 years ago. With this med, it is just worse.

I have always been able to think about and know exactly what I want to speak. I just don’t have the luxury of getting everything out of my mouth on the medication. I can get all my words out when I RAISE MY VOICE (done with a different part of the brain), but I just can’t when I speak “normal” as easily.

So, this is where I am at today. Haven’t had any more seizures (thank God), but the tremor in my arm is getting worse. I had forgotten how bad the tremor has got while on this medication. Bummer….

New Doctors! (in my town)

I’ve needed to see new doctors here in my town. When I was at a doctor’s office today, I had to do my weight and a few questions from one person. I told this person my life-story about this brain surgery. Next was another person who asked me some questions, so again I told “my story”. …and another person. …and another person. Telling my “impressive medical story” of brain-damage & brain-surgery is just something I’ve done a billion times. Interesting to see how different people can react differently.  😉

Did lots of questions and tests that were given to me today. Not really much of anything wrong with me (as usual), except the fact I’ve gained quite a bit of weight. Probably from the fact that I just “look” at my scale in the bathroom. Looking but not using. I’ve always thought… “Maybe next time I’m in the bathroom I’ll try it out.” But, this suggestive thought has never works for me.

So… I was there and I now have a list of doctors lined up for the future. I’m still thinking about contacting a new local Neurologist, just to tell my story about having brain surgery. The fact of my not needing to use seizure medication is one thing with it, but we’ll just see. Need a new Psychologist, and I’m getting that one set up soon. Other people to FINALLY have locally would be better for me.

Local doctors and other things are the best for me because I don’t have a drivers license. Just need to take a taxi, but that thing only goes within in my town….