Spoke with a new Neuro-doctor today. This discussion was about another surgery which will reduce the tremor from the right side of my body. Maybe not ENTIRELY, but to hopefully (somewhat) fix the arm/hand & [maybe] the foot. What will be done is the insertion of a wire into a certain part of the brain and the other end is connected to a probe underneath the skin. This probe is located at about the same height as the heart, just on the right side of the chest. …and underneath the skin with both the probe and “wire”.
He told me how this will be done and ALL the side effects. Those (possible) side effects don’t seem TOO bad (to me). But still, these side effects are not the most enjoyable things.
Earlier in this blog, there is the video of a person who had just received this surgery. He speaks about how he has this device to help with his Dystonia. Not damage in the brain, like me.
Several years after getting this to my brain, I will need to get back to the hospital and have another “quick” surgery. This is just to “change the battery” in the device.
To me, this is entirely CHOICE. Not a life or death necessity. Need to look… and talk… and think further into this.
Oh! I asked about the…
“Will I be awake while doing this surgery?”
Likely, it will be either… maybe YES, or maybe NO.
I can probably figure that one out when I’m on a table in the operating room. I’ll just tell you RIGHT THEN AND THERE.
My next thought is: Will I be able to “REMEMBER” anything afterwards??? 😛
Saw the Neuropsychologist for testing this morning. Just as I’ve previously explained about this tests I’ve taken, this one was… well… very close to the others. I recognized this as being the same as testing that I’ve done before.
The counting is easy to do… when I use my special way of counting numbers/letters that are spoken to me. “…put your fingers on the table and DON’T move them….”
(sure…. Don’t need to move fingers to count with them…)
Then there was the one about having a large story read to me, and describe what the whole thing was about back to her. The problem with that one is… that thing called: short-term memory. She would tell a long story, but I wouldn’t be able to remember much about what was just told to me.
Maybe I just didn’t enjoy the stories? Maybe? I’ve heard better….
Ah! There was this last one that I did and it was just too easy for me. Had four cards laid on the table in front of me with each card having a picture on it.
Square. Circle. Star. Triangle.
Each card has one a different number of shapes (3 squares or 2 triangles or 4 circles…. you understand.) The shapes on the card were one of the four colors.
Basically, she said “start”. Then, I took a card from the pile next to me and I had to decide if we were matching numbers, shapes or colors. I’d lay one down below one of the cards shown and she would say “yes” or “no”. After one or two cards that I laid down, I had it figured out. Then she said “change” and I would have to find a different way to match the cards. SHAPE or COLOR or NUMBER of images shown.
Heck, that last one was WAY too easy for me. The others…. not so much.
Today I went to see my Neurologist. I explained about the new medication he prescribed at the previous visit. The one to remove the tremor. I told him about how this one was causing me to have the “sleep-all-day” side-effect. That was WAY too much for me to deal with.
He was suggested a prescription for a different medication to do the same job to help with the tremor.
“Uh, no. I’ve had to cope with this tremor for 30+ years. Have went through PLENTY of the side-effects from each one of those prescriptions. Tremor has been better. Tremor has been worse. I have had to deal with it all.”
Once, a “new” medication was SO terrible that it caused my arm/hand to shake all night long!
So, nothing has changed…… for now.
About a week ago, I was calling over to the hospital to speak with my new Neurologist about the newest medication I’ve been on for awhile. The one thing that I hated with it is that it had to be taken 3x a day.
Well…. one of the side-effects was REALLY kicking in last weekend. Oooohhh…. That thing was making me sooo tired. I’d get up, take pills, eat breakfast, and was so tired that I just had to lay back down. I was OUT. Woke up at noon, took a pill, ate lunch and just had to lay down again! Woke up for dinner…… on and on and on…..
I finally told myself NOT to take anymore Sunday night or Monday morning. Monday, I called over to the office of my new Neurologist and spoke with the nurse about the problems for the weekend. She told me just to stop the Morning and Noon. Uh, no. I told her that I was wanting to COMPLETELY STOP the pills all-day. She and that was fine. I was only taking them for the reason of stopping the tremor in my right arm and hand. Made it “better”, but the tremor was still there (not as bad as before). If the pills were COMPLETELY getting rid of the tremor in my arm, then I would be concerned with getting off it. I didn’t want to change the med. But I could be just sleeping all day with it EVERYDAY! ARGGGG…..
So, I got completely off that pill and now my right-hand (and arm) has the bad tremor back. It really bothered me when it started coming back. But after a few days, I have just gotten used to it (I guess that’s kinda the way I’d put it). I’ve had this before, so I have gotten used to again.
I was told on the phone that the new Neurologist should call and discuss. That wasn’t happening. So, here’s where I am: The one prescription is removed. Not feeling like I just want to sleep 24 hours a day. Tremor in my arm/hand has returned worse than before.
Other than all that, everything is great again as far as the THINKING and TALKING goes. I can just stay this way until another surgery (someday) would help. That’s where I am.
I saw my original Neurologist today and was told that everything is looking good after the last 6 months.
Now, before having another surgery, I need to do MORE TESTS. All of these tests are done to see if everything is working fine. They are also done to see if there are any more changes since a few years ago…… after the originally completed brain surgery.
Ugh….. ANY Neurological tests are NOT the most enjoyable thing to do…
All of these will be checking the qualifications for the surgery I’ve been talking about recently: “fix the tremor on my right side”.
We will talk more about that as time and tests go on… and on…. and on….
This guy has a better showing of the device that I hope to be getting. He explains it pretty good….
This video that I just watched seemed very much about the type of tremor I currently have. I have learned exactly this one as being the one used in my brain/body when speaking with my Neurologist about it awhile ago. Very interesting. Having a hand device that turns the implanted simulator on/off. This person talks about how he cannot write with the one hand with it off, but can write with it on. Interesting. Hope this works with the leg/foot too…. Maybe.