Category: Brain

Thanksgiving

Darren LongLeave a comment

I’ve been wearing this Star Wars winter hat to cover my head while I go outside to protect my head. One reason is because after I had these staples removed, I have a small scab on my left side above the ear. The lady that cut the staples out told me to watch that and be careful. If the scab does happen to come off, don’t worry about it unless stuff starts oozing out. If that happens, go to the ER. Oh, great.

So…. You want to guess what happens when I pulled off my hat this morning? Sherry tells me, “uh, that scab is gone and it looks nasty. But, it’s not oozing!”

Thank God for no ooze. She got the Peroxide out and started putting it on. She told me to go to the bathroom to look at it myself. Honey, I can’t anything in a mirror with this thing above my ear. I finally told her to take a picture and let me see it that way. Looking at the picture, I can just about see the other wall through the hole. 😉

CAUTION: You may not want to look at this if you are eating.

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Thursday

Darren Long1 Comment

It’s Thursday and I’m hearing that I may be going home today. Both the Neurologist & Neurosurgeon each came by Wednesday (at separate times) and told me that Thursday maybe the day for me to go home.

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Okay. Maybe has turned to NOPE. My white cell count is dropping and my fever is rising. Not good stuff.

This is Darren blogging again before another surgery…

Darren Long2 Comments

Thanks for the prayers. Let me tell you I have some WiCkEd scars on the top and side of my head. Cuts going all over the place. These cuts and scars really leave me with quite the headache. The top/front of my head kills me at times, then I have the nurse give me some meds. I have a mesh-type beenie to cover my scarred head where the scan devices on the inside/outside of my brain. The mesh helps keep the my brain “leakage” under control.

Early Friday morning about 3 o’clock or so I woke up in a daze like state, pretty confused and my head hurt like crazy.  I knew I needed to go to the restroom. When I opened my eyes, it was hard to see and by this time in the week I had become aware enough to recognize that I had some kind of wires or something hanging – coming out of the top of my head. This- I also had a tremendous headache. Stood up out of bed and the cords from my skull yanked my head down. I grabbed the ones on the left side and pulled them straight out.  The next thing I know there is repeated drops of blood all over me and the floor. I felt them as they were being jerked out of my skull. I started screaming bloody murder.Four nurses came in after my wife yelled for help. They cleaned me up and prepped me for a CT scan.

Over the weekend, it seemed as though my brain was healing. Started to be more awake and could think better. But I have also had a tremendous headache that I am continually taking pain medication for.

Jaw is killing me because of the holes in the side of my head that are drilled are on  the jaw muscle. Chewing is difficult and painful. Opening my mouth is next to impossible, but the doctor is giving me directions on how to do exercises for my jaw when I leave the hospital.

Monday morning is the next surgery and that is to take out the leads including those that are frayed and broken inside my skull. After doing this I will blog about the options.

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Monday morning now. The doc just came in and let me know I am #2. So, about 11:00 or 12:00 or 1:00 before they take me away and another hour before they chop me back open.