Update…

Just an update: I haven’t heard anything yet. I just hope that I hear something soon because this is driving me crazy. I think I’m going to have a seizure because of my craziness. Relax, that’s a joke 😛

I’m going to call the doctors next week and see what I can find out.

Not quite what I thought…

Not the problem that I thought, which is a good thing. I went to the doctor on Friday and she said “no, a seizure is not what the problem is.” It is a side effect of an overdose of my medication. I have all these doctors that are working with me with all the same meds and I just need to get all my meds all worked out and equalized. Soooo I’m getting the one lowered that I have have too much of in my system. So it’ll take awhile to even it out to the level it should be. FOR NOW… I can barely stand up and walk normally. I seem to be drunk (I guess that’s how being drunk would be…)

I did get my two other tests set for June while I was there (at least a good thing was got out of this). Get another SPECT scan and the Functional MRI both set. Hopefully some other crap like this doesn’t happen that I need to blog about before then.

Weird Stuff

Thursday (5/23) morning, I was walking little man to school and then walking myself back. On my way back home, I walk down a road that is a slight decline and I usually “hop” a bit  faster. Got about half way down the road and noticed my eyes bouncing, so I stopped. But my eyes didn’t. They kept bouncing “left up-right down” then “right up-left down”. I thought after I rested for a moment they would stop, but they didn’t. And I forgot my damn cell phone at home. I need to get home. Being here isn’t doing me any good if this this isn’t going to stop. So… I carefully got down to Iowa street, where I need to cross. Iowa street is a fairly busy street with lots of people that drive too fast on it. Ugh. I’m standing on a corner and I “should” be able to see my street to the right on the other side, if my eyes weren’t weren’t bouncing. Now, there’s also an exit from an apartment building next to me on my left. Oh man….. I squinted my eyes, thinking this would help and it helped a bit. I finally could tell (guess) when there was not any cars coming from any direction and could could cross safely. I made it home. Eyes still were bouncing. and called Sherry told and her what was going on. She came to pick me up and take me to the ER. At the ER, they were using words such as “bleeding of the brain” among others.

On Friday (5/24), I have an appointment with my doctor over at KU Med because of this stuff happening the day before. I guess that’s how you have to set up an appointment with her? I can’t seem to do it any other way… I’ll update later after the doctor’s appointment.

VNS

This Vagus Nerve Stimulation (VNS) was always thought by me as just a “second choice” if the first operation doesn’t work out. No biggie. But I’ve also been looking into this VNS as I just did for the brain surgery. now, I know these are usually extreme cases from people, but still….

Surgery risks
Surgical complications with vagus nerve stimulation are rare and are similar to the dangers of having other types of surgery. They include:

  • Pain where the cut (incision) is made to implant the device
  • Infection
  • Incision scarring
  • Difficulty swallowing
  • Vocal cord paralysis, which is usually temporary, but can be permanent

And then…

Side effects after surgery
Some of the side effects and health problems associated with vagus nerve stimulation can include:

  • Voice changes
  • Hoarseness
  • Throat pain
  • Cough
  • Headache
  • Chest pain
  • Breathing problems, especially during exercise
  • Difficulty swallowing
  • Abdominal pain or nausea
  • Tingling or prickling of the skin

For most people, side effects are tolerable. They may lessen over time, but some side effects may be bothersome for as long as you use vagus nerve stimulation. Adjusting the electrical impulses can help minimize these effects. If side effects are intolerable, the device can be shut off temporarily or permanently.

Now, I’ve also seen a VLOG on YouTube from a guy that has extreme epilepsy and has gotten this implant. He talks about how after his implant his implant that he had to quit his job at McDonalds. I can see this. If he has a hard time communicating, it’s impossible to work. Oh, and he says it’s REAL hard to sleep at first. Having a jolt of electricity sent to your brain every few minutes can be very awaking. Again, I have questions and this isn’t a sure thing. Just a “second” thing.