One Medication Is Lowered…..

Darren LongLeave a comment

So, Mr. Highly Medicated Person, how are you doing after the slight lower?

If you don’t have to take the type of medication I do (to keep your brain from having seizures) then you are just a lucky person. I’ve spoken with other people throughout my life, and it is agreed that my meds can be seen as more important than what some others take. Seizure medication is “carefully” lowered/changed.

With that I’ve typed, I have a new amount that I am taking. Just SLIGHTLY lower. My body/brain seems to be very touchy as far as side-effects go when this happens (even when the SMALLEST change happens).

“What change?”

Ah, I am NOW remembering what it used to be like when I previously had taken this amount of medication. I can more easily communicate through speaking. Ugh, FINALLY…. Slightly easier to hold a conversation. (Then again, that may be true with my becoming comfortable at speaking louder.) I do have to say that my memory is slightly better now. Oh, that makes me feel REALLY GOOD. I don’t have to worry about walking from one room to another, and being without the memory of why the walk was made.

“…uh, where was I going…?”

These changes in everything may or may not be finished. Who knows…

Anyway. With all these “effects” and “changes” and so forth… I may be seen as a DIFFERENT PERSON by ME and OTHERS. (A better person to others? eh….)

“haha… sniff… sniff…”

Darren LongLeave a comment

This book that I have spent the time to read (yeah, yeah… listen to) was making me laugh with these wet eyes. Not the ENTIRE book, just “parts”. The book was… (hold on, let me look it up…)

It’s Okay to Laugh (Crying is Cool Too)
by Nora McInerny  Purmort 

The true story is about how they have gone through allot with finding out about a rare brain cancer. When he laid in the hospital bed, he asked her if she wanted to get married. Directly after the surgery, and as they were still in the hospital, she said “yes”.

While he was doing his chemo, they were lucky enough to have a baby together. More to the story, with that…

The last summer that was shared together was awesome with happiness and laughter. A few months later, well…

Will someone else be crying at the end of the book like me? Maybe. I was laughing with sad tears.

Already have the NEXT one chosen…. Just have to wait a week before I can get it for my monthly choice.

Clearer Thinking and Feeling Goooood….

Darren Long1 Comment

As I wrote in my Two-Day entry from Two-Weeks ago, I am now on slightly LESS medication. Oooooh, yeah. This feeeels gooood.

I know that the majority of the people that read my blog may have no idea what it is like to lower medications I take, but just believe me when I tell you that “my brain” feels so much clearer. Why? With less of these side-effects, I can think more as a “normal person”.  I can think better about EVERYTHING again.

I was out-of-town last week and I didn’t have a chance to visit my psych and got home too late to be with her this week. (I know there are now tears coming from YOUR eyes, just as mine)

The ONE thing that isn’t fixed (and probably will never get better) is my “speaking normally” because I have a hard time at it.

YELLING is GREAT! (back of the brain is where that is done from)
Singing is Super! (very small portion of the brain directly in front of the YELLING part)

Speaking normally is using the “frontal portion” of the brain.
AKA- My f’ed up portion of the brain is where I just have a HARD TIME getting the words out like a normal person. Just sounds like crap.

So, I’m happy “enough” for the time being.

Oh, yeah…
I started a new book just last night!
“Is it good??”
I already have tears in my eyes….

So, I am personally … Feeling Happy for my Life … Reading a Book and Crying … Wha??

I’ll tell you about the book LaTeR.

Today is a Two-Day on a Tuesday!

Darren Long1 Comment

Ok… Ok… This is Tuesday and this is FIRST a….

Psych Appointment

Just the usual…. while eating lunch…

Psych: How have you been doing?
Me: I’m doing good…..

You know, the usual…

Then the SECOND thing is…

Neurologist Appointment

Ah… What did we learn there today?
Well, it’s been awhile since I’ve seen one of my Brain Docs….

Me: I’m doing good…..
Doc: Let’s start lowering the Meds.

At the first appointment, I was ASKED how I was doing.
At the second appointment, I was TOLD what I will be doing.

Ugh, I think I did these appointments backwards today…
Eh, what am I going to do now…?

I think I will give myself a nice “pat on the back” for the hard work.

😉

New Job at the Hospital…

Darren Long1 Comment

Well, this Friday position over in HR to do “filing” of paperwork has become… well… not as complicated for me as was thought. So, they informed me:

“Darren, we don’t have enough for you to do (every Friday), so we only will need you to come and work for us every-other Friday.”

Ugh. Great. What am I going to do with these OTHER weeks I’m not volunteering there?
Wellll… Ok.

Here’s my story: Buddy and I are always talking after lunch while I’m waiting for my ride home. I do my jobs on Friday morning. He’s been sitting and volunteering his job (my old Friday morning job) for YEARS on Friday afternoons. So, it was agreed that we would do it this way: when I am not working in the other building, every-other morning, then I will just work at this position again (his position)….on those days…for the afternoon.

Uh, hell no. That only worked (one day) until I had the Volunteer “Lady Up Above” caught me sitting there. Doh! I had to get out of there before she kicked me HARD.

“YOU cannot volunteer at afternoon positions! YOU informed me of this!”

Dang.

Ok…. Ok….

So, I went back to see her (after getting the yelled at and kicked) to inform her that I needed something to do on the every-other Friday since I have nothing. She told me I need to go work at “that other building down the street” and AWAY from the Hospital itself.

“Just Go Away….”

This is cool. Now, the opposite weeks that I work at the HR office, I work over at the storage building. I create and insert forms into a folder, and then I put everything into a box. An EASY job and it’s better than just sitting at home on the “Off Days”.  🙂

(Just between you and me… these guys at the new location want me to work all day/everyday after I’ve been there just one morning? Hahaha… I told them I’ll think about it.)