Today I went to see my Neurologist. I explained about the new medication he prescribed at the previous visit. The one to remove the tremor. I told him about how this one was causing me to have the “sleep-all-day” side-effect. That was WAY too much for me to deal with.
He was suggested a prescription for a different medication to do the same job to help with the tremor.
“Uh, no. I’ve had to cope with this tremor for 30+ years. Have went through PLENTY of the side-effects from each one of those prescriptions. Tremor has been better. Tremor has been worse. I have had to deal with it all.”
Once, a “new” medication was SO terrible that it caused my arm/hand to shake all night long!
So, nothing has changed…… for now.
About a week ago, I was calling over to the hospital to speak with my new Neurologist about the newest medication I’ve been on for awhile. The one thing that I hated with it is that it had to be taken 3x a day.
Well…. one of the side-effects was REALLY kicking in last weekend. Oooohhh…. That thing was making me sooo tired. I’d get up, take pills, eat breakfast, and was so tired that I just had to lay back down. I was OUT. Woke up at noon, took a pill, ate lunch and just had to lay down again! Woke up for dinner…… on and on and on…..
I finally told myself NOT to take anymore Sunday night or Monday morning. Monday, I called over to the office of my new Neurologist and spoke with the nurse about the problems for the weekend. She told me just to stop the Morning and Noon. Uh, no. I told her that I was wanting to COMPLETELY STOP the pills all-day. She said that was fine. I was only taking them for the reason of stopping the tremor in my right arm and hand. Made it “better”, but the tremor was still there (not as bad as before). If the pills were COMPLETELY getting rid of the tremor in my arm, then I would be concerned with getting off it. I didn’t want to change the med. But I could be just sleeping all day with it EVERYDAY! ARGGGG…..
So, I got completely off that pill and now my right-hand (and arm) has the bad tremor back. It really bothered me when it started coming back. But after a few days, I have just gotten used to it (I guess that’s kinda the way I’d put it). I’ve had this before, so I have gotten used to again.
I was told on the phone that the new Neurologist should call and discuss. That wasn’t happening. So, here’s where I am: The one prescription is removed. Not feeling like I just want to sleep 24 hours a day. Tremor in my arm/hand has returned worse than before.
Other than all that, everything is great again as far as the THINKING and TALKING goes. I can just stay this way until another surgery (someday) would help. That’s where I am.
I saw my original Neurologist today and was told that everything is looking good after the last 6 months.
Now, before having another surgery, I need to do MORE TESTS. All of these tests are done to see if everything is working fine. They are also done to see if there are any more changes since a few years ago…… after the originally completed brain surgery.
Ugh….. ANY Neurological tests are NOT the most enjoyable thing to do…
All of these will be checking the qualifications for the surgery I’ve been talking about recently: “fix the tremor on my right side”.
We will talk more about that as time and tests go on… and on…. and on….
This guy has a better showing of the device that I hope to be getting. He explains it pretty good….
This video that I just watched seemed very much about the type of tremor I currently have. I have learned exactly this one as being the one used in my brain/body when speaking with my Neurologist about it awhile ago. Very interesting. Having a hand device that turns the implanted simulator on/off. This person talks about how he cannot write with the one hand with it off, but can write with it on. Interesting. Hope this works with the leg/foot too…. Maybe.
Ehhhh…. Need to REALLY make sure that you’re taking the RIGHT amount of medicine. I have been taking ONE of these new pills @ 3x a day. Well, FOR SOME FREAKING REASON, I thought it eventually had to move it up to TWO freaking PILLS @ 3x a day. UGH!
That was an ignorant mistake. My head has been spinning! Aaaaaaaaarrgg!
Straightened everything out last-night, as far as getting the right amount back into my system. I’m WAY better.
Don’t do that…. Things can always happen that you don’t know about. MAKE SURE YOU TAKE THE RIGHT AMOUNT!
Back in March, I was commenting more about how this right-hand of mine shaking too much was really bothering me. Welll…. It is either…
- not shaking so bad.
- not noticing it.
- eh, just got used to it. Pretty much the same as not noticing. I mean, it shook bad before and now it just shakes “more” again. Maybe I’ve forgotten how much better it was?
Kinda leaning towards the “not so bad”, but I’m sure that I’ve gotten used to it.
Been sort of surfing through YouTube and found other people who have gone through the same new surgery I’m looking forward to. ……
Easiest way to say anything (like the surgery I’ve HAD BEFORE) is the outcome is not exactly the same for every person who has it done.